We are widening the NET! This year, we want to highlight organizations raising awareness about neuroendocrine tumor (NET) cancer – a rare and commonly misdiagnosed form of cancer. NET cancer is frequently misdiagnosed with conditions such as: anxiety, menopause, Irritable Bowel Syndrome (IBS), asthma or diabetes. As such, NETs require greater awareness among the medical community and the public at large.
On November 10, organizations across the world recognized NET Cancer Day and united patients, advocates, families & friends, healthcare professionals, and caregivers to speak in a unified and strong voice. We are featuring some of the initiatives that brought NET cancer to the forefront and sparked a global conversation. #LetsTalkAboutNETS
The National Park Run for Anna Rose
Gil Schaenzle began her mission in November 2017, months after her only child, Anna Rose, passed away at age 21 from Adrenal Cortical Carcinoma, a rare form of NET cancer. Gil set out on a quest to hike, run, or walk national parks in the US to help others better understand NET cancer. In August 2018, Gil crossed the “Zebra Finish Line” at Rocky Mountain National Park, having traveled 42,000 miles and walked, ran, and paddled 350 miles in 51 national parks, 12 national monuments, and two national preserves in nine months.
With support from the Healing NET Foundation, Gil returns to where it all started. She’s on the road again and revisiting parks where she started her national tour in honor of NET Cancer Day. Along her journey, she will continue to participate in the worldwide effort to educate others about NET cancer. To read more about Gil’s journey, visit her blog. For more information about the run, visit the Healing NET Foundation.
NANETS Regional NET Education Program
The North American Neuroendocrine Tumor Society (NANETS) hosted a regional education program in New Orleans on November 10. The program aims to bring together professionals in the areas of oncology, gastroenterology, pulmonology, surgery, radiology and allied fields to increase the understanding of NET diseases, resulting in better treatment for NET patients. In addition, experts in the field of NET disease shared their strategies to improve diagnosis, treatment, and management of NET cancers.
The enterade team was on-site this past weekend and met with experts to learn about the latest research and treatments in the field. We also shared data from our recent study with attendees at the conference. Research shows that 76% of NET patients reported improvements in diarrhea after drinking enterade. In honor of NET Cancer Day, we are offering 20% off all products and free shipping using promo code “NETS20”. Learn more about our products: enterade.com/shop-now.
“Hope Is Like Air” Pinwheel Campaign
NET patient organizations around the world are helping to launch an international campaign: “Hope Is Like Air.” The global initiative involved thousands of zebra-striped pinwheels adorning green spaces and special events in the US and Europe.
Why zebra stripes? Zebra stripes are the symbol of neuroendocrine tumors, meant to signify the individuality of each patient and their disease. They are also meant to encourage healthcare professionals to consider diagnoses beyond the most common ones. Medical students are taught “Think Horses” (common illnesses), not “Zebras” (uncommon diseases). Since NET cancer is often overlooked, the NET community encourages providers to metaphorically consider the rare and unexpected possibility of a zebra – not a common horse. For more about the campaign, read the full press release here.
We support all those who are making a difference this World NET Day and throughout the year. Learn more about NET cancer and awareness programs at https://incalliance.org/. Let’s continue to get the word out!